An Important Note...
The North Carolina Center for the Care of Huntington’s Disease believes that decisions about medical care must occur between a patient and a trusted medical professional. The information presented on this website is not intended to replace or interfere with the course of your medical care, but only to assist you in your understanding of Huntington’s Disease. No information contained on this website is offered or intended as medical advice. The information presented is a summary of information available in October 2010, and has not been peer reviewed outside the Medical Advisory Group of the North Carolina Center for the Care of Huntington’s Disease. As the understanding of Huntington’s Disease is evolving, we refer you to your private physician for a full and detailed understanding of HD, and the individual factors that are involved in your medical needs and health care. If you have questions, please contact your personal physician, or email us at hdinfo@nc-cchd.org.
Your confidentiality is of utmost concern to us. We recognize that many families with Huntington’s Disease fear inadvertent disclosure of risk status to insurance carriers, employers and the general community. We will not share any information you provide to us for any reason without your permission. Please be advised that the security of information transmitted by email, over the internet, in internet based discussion boards, or social media sites cannot be guaranteed. Information sent by mail or fax will be stored in a secure form, backed up to a private on-site server. For more information about confidentiality, please see NC-CCHD’s HIPPA form (link here to HIPPA form).
If you have emergency medical needs, please contact your private physician, local hospital, or call 911.
